Anna Claire, my three and a half year old daughter, has suffered with PFAPA for the past two years. After countless fever episodes, doctor appointments, and no real solutions or answers, I decided to start a blog to encourage and share with other PFAPA parents. This blog is dedicated to all the parents enduring life's journey with a PFAPA child. My hope and prayer is that one day our little ones will live a healthy and normal life.
Tuesday, May 14, 2013
The Last Resort...Functional Medicine
I am at my wits-end with PFAPA and feel like there is more to this syndrome than fever episodes and using steroids each month to mask the symptoms of a deeper problem.
Last week, we visited with Dr.K, a doctor of functional medicine. I figure we have nothing to loose. After listening to Anna Claire's story and medical history, he gave us his opinion. He thinks there is a viral infection in her throat/neck area. He also mentioned that the MMR vaccination blocks or clogs calcium channel which control the body's temperature. Both theories made perfect sense to me, especially the correlation with the fevers and the vaccination. Several days after her MMR vaccination was when the fever episodes began. Also, the other specialist we saw mentioned that "live" vaccination can trigger an episode. After the MMR vaccination, I have refrained from her receiving any more shots due to the fear of the onset of an episode.
Dr.K's suggestion was to try supplements to boost her immune system, clear out the calcium channels, and get rid of the viral infection. Anna Claire will be on the supplements for eight weeks to see if the episodes go away, are less intense or even space themselves further out.
I do not know if this treatment will work, but I have high hopes. I will keep you posted.
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do you have any more info on the vaccine connection? My son started PFAPA 4 weeks after his 4 year MMR, TDap, varicella and flu shots.
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